We ontvingen een bericht van een student aan de Erasmus Universiteit in Rotterdam.
Zij zou graag in contact komen met mensen of mantelzorgers van mensen met een zeldzame ziekte (zoals FTD) om een 30-45 minuten interview af te nemen.
Het orginele bericht van Abby vind je hieronder (in het engels),  je kan via de link direct een afspraak met haar inplannen.
Hello FTD Lotgenoten,
I hope this message finds you well. My name is Abby Jung, and I am a research master’s student in the Genomics in Society program at Erasmus MC. I am conducting my thesis research about rare disease research at OASYS NOW.

The purpose of my research is to uncover and document what rare disease patients value most and how these values can influence the interaction of patients with research.

I am writing to ask if any of your members or a patient representative would be interested in participating in a 30-45 minute interview as part of my research project. This valuable input and perspective will be important to create positive change in the rare disease research landscape, leading to better patient outcomes/experiences. I have attached a scheduling link that can be passed on to those who are interested.

Please use this link if the one above does not work: https://calendly.com/abby-oasysnow/30min

Thank you, and I look forward to your response,

Abby Jung